Kids Helping Kids

A few weeks ago, at our Annual Run/Walk in memory of Sonia Balliet-Heidenreich, a sweet little 7 year old approached me, carrying an envelope.ella-donation

This little girl, Ella, is the daughter of one of Sonia’s best friends. Ella did not get to grow up knowing Sonia, who suffered from, and eventually died from cystic fibrosis–but her mother, Gena, has worked tirelessly to keep Sonia’s memory alive.

Through the years since Sonia’s death, Gena has raised thousands of dollars for the Cystic Fibrosis Association of North Dakota. These dollars have helped people living with CF to #BreatheEasier through direct financial support for medications, travel to and from medical appointments, college tuition assistance, and lung fund matching funds.

As the saying goes, little eyes have been following Gena, and her daughter, at the tender age of 7, wanted to help out too! She let her mom know that she was going to give her very own money–$12.57 to be exact, to help others living with CF.ella

Gena’s example of generosity, and of supporting a charity that is in line with her passions has successfully been passed on to her daughter!

We applaud Ella for her sweet, generous spirit! We want her to know that the money she so selflessly gave will go towards helping little girls her age!

Thank you, Ella, for helping our friends with cystic fibrosis to #BreatheEasier!


Take a Swing at Cystic Fibrosis

Press Release

For Immediate release:

23rd Annual Cystic Fibrosis Association Golf Tournament

Take a swing at cystic fibrosis.

Mandan, ND, June 3:  The 23rd Annual Cystic Fibrosis Golf Tournament will be held at Prairie West Golf Course in Mandan, ND on Friday, June 3. This scramble style tournament features a picnic lunch, hole-games, door prizes, a Hole-in-One Contest Sponsored by Kupper Chevrolet-Subaru, a margarita hole, silent auction, and dinner.

Registration is $85 per golfer or $340 per team which includes green fees, cart rental and meals.

Registration forms can be found at CFANorthDakota.comGolf Slider.

Proceeds will support local individuals suffering from cystic fibrosis, a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe.

For more information contact:

Pam Thompson, Development Director

Cystic Fibrosis Association of North Dakota

701.222.3998 (office)

701.426.7657 (mobile)

About the Cystic Fibrosis Association of North Dakota:

The Cystic Fibrosis Association of North Dakota (CFA) devotes its time and financial resources to helping North Dakotans with cystic fibrosis (CF) and their families by:

  • Assisting with the costs of medications and medical equipment not covered by insurance
  • Providing funding for lung transplants
  • Coordinating support group meetings
  • Providing college scholarships so young people with cystic fibrosis can focus on studies, and not compromise their education because they need jobs to support their educational endeavors
  • Informing the public about cystic fibrosis and current research
  • Lobbying to protect individuals with CF and their families from undergoing undue hardship and ensuring their right to receive health care coverage.

The CFA is a statewide non-profit corporation. It is not affiliated with any national or international parent organization, nor does it receive any government assistance.

Giving Hearts Day is THIS Thursday! #GivingHearts16

The Cystic Fibrosis Association of North Dakota has been selected once again to participate in Giving Hearts Day on February 11, 2016. Giving Hearts Day is a 24-hour online fundraising event. Contributions of $10 or more will be matched by generous donors.

To support CFA and have your donation matched, simply go to on February 11, 2016!

Your generous donation will help our friends with CF to #BreatheEasier!

We would love you to meet just a few of these friends!

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Everyone Can Pitch In!

Lemonade stand
The Johnson/Brachman Family

The Johnson/Brachman family: Erin and Ryan Johnson, Riley 13, Adam 9, Jacob 9, Kayla 8, and Jack 4 held a lemonade stand to support the Cystic Fibrosis Association of North Dakota.  $162 was raised and donated in memory of Sonia Balliet-Heidenreich. for the 6th annual Sonia 5K in Fargo Oct 3rd.

What a great way to teach kids philanthropy and service! Thank you so much for your hard work to help our friends with CF to #BreatheEasier!

Do you want to hold a mini-fundraiser for CFA? Contact Pam at for different ways that you can help!

Meet Addie: 2015/16 CFA Youth Ambassador!

Addie’s mom, Jess, was kind enough to write these words about Addie.

Adalyn (Addie) was born March 3, 2010 and has been lighting up Mike’s and my lives ever since.

Addie’s cystic fibrosis 2000-01-01 00.01.24story starts at birth. She was born just before 11:00 PM and was taken to the nursery shortly thereafter where she was monitored and showed her first symptoms of Cystic Fibrosis, which was later confirmed in the newborn screening. Addie spent her first night undergoing x-rays and tests unbeknownst to us. Cystic Fibrosis was one of the diagnoses her pediatrician suspected early on due to her symptoms after birth and he immediately went into action to find answers.   Addie spent a week in the NICU due to a fever from an unknown source and to watch for any additional symptoms. We received the definitive CF diagnosis when Addie was released from the hospital at 1 week old.Read More »