Meet Addie: 2015/16 CFA Youth Ambassador!

Addie’s mom, Jess, was kind enough to write these words about Addie.

Adalyn (Addie) was born March 3, 2010 and has been lighting up Mike’s and my lives ever since.

Addie’s cystic fibrosis 2000-01-01 00.01.24story starts at birth. She was born just before 11:00 PM and was taken to the nursery shortly thereafter where she was monitored and showed her first symptoms of Cystic Fibrosis, which was later confirmed in the newborn screening. Addie spent her first night undergoing x-rays and tests unbeknownst to us. Cystic Fibrosis was one of the diagnoses her pediatrician suspected early on due to her symptoms after birth and he immediately went into action to find answers.   Addie spent a week in the NICU due to a fever from an unknown source and to watch for any additional symptoms. We received the definitive CF diagnosis when Addie was released from the hospital at 1 week old.Read More »

Join Us for the Holiday Homes of Hope, November 14 and 15

2015 HHOH infographic

It is becoming tradition to open the holiday season in Fargo with the Holiday Homes of Hope Tour and Holiday Hope Boutique and Vendor Fair.

Yearly this event has grown, and this year is shaping up to be the biggest and best yet.

This year’s tour features eight gorgeous homes in the Rose Creek neighborhood of Fargo. Each home is expertly decorated by eight different designers. This tour is a feast for the senses! Gather your friends and join us for the day, or spread your home viewing out for the whole weekend! Read More »

Register today for the Turkey Trot!

Turkey Trot
Get your turkey costumes ready!

The air is getting cooler, the Pumpkin Spice Lattes are on sale, and it is time to get ready to Turkey Trot on Thanksgiving morning!

This year marks the 26th annual Turkey Trot benefiting CFA of North Dakota. Cystic Fibrosis has been in the news a lot lately, with new drugs on the horizon that can mean BIG changes for our friends living with CF. But, with these big changes comes a BIG price tag!Read More »

6th Annual Sonia 5K a Success

Sonia walk
Run, walk, or ride!

Saturday October 3 started out chilly, but things quickly warmed up as about 160 people of all ages gathered to walk, run, bike, and stroll a beautiful 5K path in memory of Sonia Balliet-Heidenreich. Nearly $8,000 was raised to benefit people in North Dakota living with cystic fibrosis. Brunsdale park in South Fargo was a sea of purple in memory of Sonia.

Thank you to all who came out to support CFA and remember a life well-lived!

Special thanks to the following sponsors who gave $200 and above for the walk: Truck Licensing and Service, Cloverdale Meats, North Country Contracting, Berthold Oil Terminal, Dakota Eye InstituteInvestcore, Inc., Carol Schwartz and Les and Paula Balliet.

Halfway sign

Stay tuned for next year’s event!

6th Annual Run/Walk In Memory of Sonia

Cystic Fibrosis is a tricky disease.

Obviously the person living with CF is most affected. But there is a ripple effect with cystic fibrosis. The disease eventually touches all of those who surround the patient.

There is no better example of this than Sonia. soniaphoto

Sonia Balliet-Heidenreich was diagnosed with CF at five months of age. She spent her life in and out of doctors’ offices for both routine check-ups and prolonged intravenous doses of antibiotics to fight persistent lung infections. She spent nearly 4 hours a day taking medications, undergoing medical treatments and cleaning and preparing for the next round of treatments. In addition, she spent numerous nights/days traveling to clinics and hospitals where she could receive proper care at a location accredited for cystic fibrosis patients. Even while spending a great portion of her life fighting her own illness, she still spent her days helping others with CF through blogs, online support groups, over the phone, and through e-mail. Even during the last months of her life when the infections in her lungs were overwhelming her she still continued to support the CF community.Read More »